As many of you might have realized I have been out of touch with the computer for the last few days. I have been at my middle daughter's house over the weekend and through yesterday. It was a wonderful visit with them as always, and it sure was hard to leave, but soon, hopefully we will be down there living next to them.
I went to the neurological doctor on Monday. The people at the UAMS ALS Clinic are awesome! We, the wife, daughter, and I, got there at about 7:30 and did not leave again until about 12:30. During that whole time we didn't have to wait on anyone for more than 10 minutes at a time. The doc, her nurse, social worker, speech therapist, dietitian, pulmonary specialist, and the head of the Arkansas MDA chapter all were very gracious and understanding. I could not have asked for better treatment any where at any time.
Doc did confirm that the prognosis is 3 to 5 years from onset. Seems a short time, but I am sure that time will drag nearer to the time of my leaving. Again I am at peace with all of this, I just wouldn't want to wish this on anyone else.
One of the ironic things we did was pay off my funeral expenses............. on my birthday. Yeah, I made fun of that. Couldn't resist. It is a relief though to know that the funeral expenses are paid in full and Golddean will not have to worry about that when the time comes.
One thing more, thank you to all that have said prayers, kept good thoughts, and sent well wishes. You don't realize how much that really helps to the one receiving it.
Until next time..................
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