On the 28th of January 2015 I was diagnosed with Bulbar onset ALS. This is an attempt at recording events, situations, and feelings in this new turn in my life. Some of you may think this is a self serving blog about how well I am handling this devastating news. Those that know me, know that is not true.
This is an attempt at letting folks know about this journey that I have started on. It will be as honest as I can make it. There will be some laughter (alot I hope!) and some tears, more than a few I fear. There may even be some hurt feelings as I feel the need to honest and forthright about what I will be going through.
At this point I have no idea how much time I have left, but with what time I do have left I intend to make the most of it. Doing until I can no longer can. Loving every day those that are special to me. Giving comfort to my family.
My family is who I worry about. I don't worry about myself because I know what will be the ultimate out come and I am at peace with that. Some say it is amazing how I am handling all of this, and that they admire and are in awe about my composure. I do not feel that I am that special, nor am I an inspiration. I am just me. Trying to be the best that I can be.
I will write more latter. If you like this and want to hear read more just let me know.
Until next time..............
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